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Blind Citizens Australia: the united voice of blind and vision impaired Australians. Our mission is to achieve equity and equality by our empowerment, by promoting positive community attitudes, and by striving for high quality and accessible services which meet our needs.
COPYRIGHT: Reproduction of articles appearing in Blind Citizens News is permitted, provided Blind Citizens News and the author(s) are acknowledged.
Large Print ISSN 1441-449X
Braille ISSN 1441-5658,
Cassette ISSN 1441-564X
Lynne Davis Well, what a moment for reflection - not only the last issue for the year,
but for the decade, the century, and even (depending on your point of view)
the millenium. And trust me: I promise not to mention the very-overdone
M-word again in this issue! As is usual in the post-Convention issue, you will find that much of the
current issue is devoted to BCA business of various kinds. But I hope you
will not cease reading at this point - a perusal of the contents will
convince you, I'm sure, that your organisation is doing amazing work and
deserves your whole-hearted interest and support. You will find in the
President's overview and the Executive Officer's summary (both reproduced
from BCA's Annual Report) an indication of the wide array of activities in
which we are involved, and how much has been done in the past year to change
what it means to be blind, not only in Australia but in a number of other
countries as well. BCA's annual Convention was held in Brisbane in mid-October - the first
time it has ventured into northern Australia - and a very good time was had
by all who attended. There is a report in this issue from one of our young
Leadership 2000 participants, and a summary of the resolutions which were
passed at the Convention. As usual, the Convention Dinner was the occasion
for the presentation of BCA's special awards to people whose work we value
highly. This year the David Blyth award was presented to Graeme Innes
(Sydney), and Certificates of Appreciation went to Terry Boyle (Brisbane) and
Kylie Partington (Melbourne). The full texts of the citations for these
awards will appear in the next issue. Suffice it to say here that Graeme has
really been on a roll this year: he was recently appointed as Deputy
Disability Discrimination Commissioner in the Human Rights and Equal
Opportunity Commission, and since Convention has been elected as the new
President of the Royal Blind Society of NSW. He also told us in his
acceptance speech that the high point of his year was his baby daughter's
first words - "Bad Dad"! Congratulations on all fronts,
Graeme. In the August issue I mentioned that the first (February) issue for 2000
will be largely devoted to the topic of "Employment, Underemployment and
Unemployment". I KNOW that these are big issues for many blind and vision
impaired Australians, but I haven't been exactly inundated with offers of
contributions to this issue. So, please, now is the time to get in touch with
me either by writing a letter to the editor, sharing some information
relevant to the topic, or expressing your thoughts in an article. The closing
date is just before Christmas, so give me lots of work to do while you're all
out celebrating the word I've promised not to mention again! Finally, a reminder about the variety of formats in which you can receive
the News. You can have it in Braille, large print, audiocassette, computer
disk or email, or you can read it on BCA's web page. So if the way you're
getting it now is not the format you'd prefer, contact the national office
and ask for a change. Also, if you receive the News on audiocassette and
sometimes would like to keep the cassette for future reference, you can do
this if you return the mailer with an unwanted cassette in it (we get charged
postage for empty mailers). Have a good summer and enjoy your celebrations. See you again in 2000! Greetings! I'd like to respond to Graeme Innes' recent article "The Proof is in the
Pudding" (August 1999) regarding his first year with his guide dog, Jordie.
I'd like to make two points here: Graeme, you should lighten up. Open your
eyes (figuratively speaking, of course) and see the wonderful thing that you
have. Secondly, if any readers of BCA News are feeling daunted, well ... I
can understand, but don't be. Recently my second guide dog, Garnet (no, I'm not politically correct and
I think dog guide sounds ridiculous although I mean no offence), died of
cirrhosis of the liver. I have just been trained with my third dog, Zosh,
and I am not saying that the whole procedure is a bed of roses. However, if
you want to get a guide dog and are only focussing on the fact that you need
to keep up your work commitments and are not prepared to take time out
of your busy schedule, then yes, you may well be in for a difficult time.
I also take strong exception to Graeme's comments on people talking first
to his dog. While he is "insulted by the fact that most people talk to
Jordie before they talk" to him, causing him to question his "social status"
in the community, I, on the other hand, find it very refreshing that people
will take the time out of their busy lives to ask questions about my dogs.
People are interested. If we walk the streets as blind people with bad
attitudes, feeling ignored and undervalued, then I think these are self
esteem issues we should be dealing with as individuals. Moreover, we are not
alone. Many people from different groups in society express these
frustrations, not just people with disabilities - mothers with young babies,
for example, who feel that they have lost their own identity and are seen
only as Mummy. If all we do is complain about this interest that people are
showing, then I believe we are contributing to the negative perception of
blind people held by some members of the community. More often than not,
someone will ask me a question or two about my dog. Within seconds, they are
telling me about their dog or their lives, and we have moved on to general
chitchat. I think that this often takes the focus away from our difference,
and sometimes people forget that I am blind. When people are able to do that,
I take it as a compliment. Furthermore, why is it that you see adults who pat your dog without first
asking permission as "demeaning of" you "as a person"? Could it not be a
simple mistake, an exuberance on the part of that person, an interest that
they are taking? Have you never done anything that is politically incorrect?
The people we associate with, and even our dogs, often make mistakes.
However I believe that the way our dogs act is often linked very strongly
with our handling. I certainly don't have everything resolved. I am sure
there are heaps of things I still need to pick up on. Still, both of my dogs
have been obedient. With Garnet you could have left the pizza on the floor,
and he wouldn't have touched it. While you tried to write a well-balanced article and point out both
positives and negatives, I'd like to go a step further. Before all of you
reading dive on to your keyboards to send an outraged response to this
letter, I would like to say that I accept that the above is personal opinion
only. So is what follows. I have used both cane and dog. I believe that
the dog is the only way to go. If you want to feel, look and be more
independent, a more competent traveller, then I believe that this is the best
way out. The friendship, the loyalty and the affection are just extra
bonuses. Louise Pearson Victoria Greetings! I am a Braille teacher and have had the satisfaction of helping
people to master the art of reading Braille. Currently, I am teaching a lady
who lives in Tasmania and has no hope of having face-to-face tuition. This
is my first attempt at using correspondence with the assistance of cassette
tapes and I'm very pleased that this student is progressing well. It is a
concern that there must be others in this country who are unable to attend
a centre for tuition and I would like to offer to help in this field -
despite where a potential student lives. I have had teaching experience when
I was a teacher with the Postal Training School in Adelaide. I have also had
extensive experience in Sunday school work. In my job as postmaster I also
trained staff on a day-to-day basis. If anyone wishes to contact me I am
available by telephone on 08-8522-5155. Perhaps there is someone else who would like to take up this challenge to
help others who are in remote situations? Allan Mountford South Australia In the August issue I was very pleased to hear about the use of shower
safety strips for tactile marking of all sorts of home equipment. I already
have a few markings on my stove and microwave but Kevin Rowley's very
practical idea is really good. Another matter that I'd like to air is the attitude of sighted people -
I should say SOME sighted people - who are employed by agencies to work with
vision impaired or blind folk. I have found here in Tasmania a cool response
to my offer, on numerous occasions, to help in public relations or to chat
with and hopefully encourage those who are newly vision impaired or just
"down" about things. I feel I have a lot to offer as prior to becoming vision impaired I was
a nursing sister
(three certificates). I have been vision impaired for about 28 years. I
am married and have had 3 children. My husband and I have a hobby farm and
grow organic fruit and vegetables and our own beef cattle. The attitude I mentioned earlier gives me the impression that vision
impaired folk have to be mollycoddled and looked upon as inferior. It all
boils down to making the general public aware that although our eyes are not
good, in most cases we are normal, intelligent people well able to make a
mark in our environment. Maybe you have some ideas how I can best put into reality my desire to
encourage and support others. My experience of life to this point has not
been a bed of roses, but I'm still smiling, positive and will not be put on
the shelf. My phone number is 03-6496-1489 if anyone wants to speak with me
about the above. Evelyn Watkins Tasmania How refreshing it is to deal with an enlightened book publisher. I rang
Federation Press today to obtain a copy of Chris Ronalds' book,
"Discrimination Law And Practise". I explained that I have a vision
impairment, and that I read using my computer which has both Braille and
speech output. I therefore requested the book on disk. Usually this request
is met with long silences, irrelevant questions, and details of why such a
request could not possibly be complied with, either because of complex
copyright considerations or insurmountable technical difficulties. But not
at Federation Press. They responded immediately that "of course we can do
this, and we will charge you the same price as for the print copy. We will
ask you to sign an undertaking that you will not print and/or publish any
part of the book. In which format would you like it?" During our pleasant
conversation - a change from my previous experiences - they commented that
to refuse my request would probably be in breach of State and Commonwealth
discrimination legislation. I congratulate Federation Press, and encourage
other publishers to follow this excellent example. Graeme Innes New South Wales Andrew
Downie This is what I get for opening my big mouth. I recently joined in a very
useful discussion on VIP-L (Vision Impaired Persons List) regarding
echolocation. My contribution reflected my lifelong experience as a blind
person and my formal qualifications in the area of perceptual psychology.
It was also an opportunity for me to indulge my passion regarding independent
mobility for blind people. As a result, the Editor asked me to write this
article. She promised that it would not have editorial scissors applied to
it on the basis of political incorrectness, so here goes. I will begin with some autobiographical details relating to my various
aids to mobility so that you are aware of my perspectives. There will then
be a discussion of attempts to provide more effective aids to orientation and
mobility. My twin brother and I were born with congenital glaucoma. I had some
limited light and colour perception until just before my fifteenth birthday.
I did not receive any formal orientation and mobility (O&M) instruction
while at school, because it didn't exist. My first job was as a machine operator in a factory. Over the following
18 months or so I variously walked, caught buses and trains to get to and
from work. On some occasions, I ventured off the beaten track between
lodgings and work. There was for me, though, a general feeling of being
trapped in a quite limited range of travel and, therefore, activities. One day, while in the process of drilling holes in 3,000 or so
thingymibobs, the solution to this rather limited and boring existence hit
me. The path which led me to decide to apply for a Guide Dog was much
different to that described by Graeme Innes in his recent article. Whether
due to my agrarian roots is hard to know, but I am fond of animals generally
and dogs in particular. The notion of having a dog was therefore not at all
an unpleasant one. Returning from Melbourne with the dog marked a major
turning point for me. Whereas venturing off the beaten track to and from
work was previously a daunting undertaking, I soon began looking for excuses
to travel to places far and wide, including very busy areas. With this new
found freedom, the thought of eternally drilling holes in thingymibobs and
cutting chamfers into widgets was even less appealing than previously. I
won't bore you with my entire curriculum vitae. In summary, though, I worked
in a variety of clerical jobs while studying at TAFE and university, emerging
with an honours degree in psychology. This, and the work I have done since,
was completely beyond my wildest expectations upon leaving school, but if I
go further down that track I'll digress onto another favourite topic and away
from mobility issues. So back to mobility. In the mid 1960s, while standing in my bedroom on
my parents' farm, I heard a radio news item about the Sonic Torch, invented
by Professor Leslie Kay in England. The concept filled me with enthusiasm.
It was with great delight, then, that in 1970 I accepted an invitation to be
part of the pilot study of the Binaural Sensory Aid, the forerunner to the
Sonic Guide. Using the aid in conjunction with the dog gave me a valuable
opportunity to learn to interpret the information it provided. By the time
the dog was showing her age in the late 1970s, I believed I could travel
competently with the Sonic Guide. An O&M instructor gave me something
like an hour of instruction with the long cane and I set myself a year to
evaluate my performance with Sonic Guide and cane. It was necessary to
sharpen some skills with the Sonic Guide, but the transition was a very
comfortable one. Therefore, over twenty years later, I still use the Sonic
Guide and long cane. Incidentally, the aid I use now is the one I was
unpacking on my lounge room floor as John Kerr was sacking the Whitlam
Government. Some years ago, I found a Mowat Sensor lying neglected at a place which
collects funds in the name of providing rehabilitation to people who are
vision impaired. I began experimenting with it and, after initial
scepticism, this much more simple electronic travel aid (ETA) began to reveal
its potential and I bought one. I generally use the Mowat when walking
around the three-storey building I work in and on quick trips to the shops.
I have used it in the centre of Sydney and, while I generally walk more
slowly with it in crowded areas than with the Sonic Guide, it is quite a
helpful gadget. For me, then, ETA's have provided a great deal of independence,
flexibility and enjoyment. It is a huge understatement, however, to say that
they are not for everybody. For a host of reasons, most people who trained
with the Sonic Guide ceased using it. My formal research and informal
discussions suggest that gross discomfort and a perception of poor cosmetics
had a large part to play. It is also highly likely that the long learning
curve was a strong contributor. I mentioned earlier my immense feeling of
independence when returning home with my Guide Dog. While I was doing some
impressive things with the Sonic Guide at the end of training, on the other
hand, I was a long way from feeling super confident with it. It was six
months or so, for example, before I began detecting up curbs. The initial
confusion in crowds, with people moving at different speeds and in different
directions, is still a vivid memory. But that's all it is. It is now the
other people who sometimes get confused as a blind person (identified by the
long cane) negotiates a path through the crowd when seemingly having no right
to do so. Given the resources put into the purchase of, and training with, ETA's by
mobility agencies and the poor level of acceptance of the aids by blind
people, it is not surprising that enthusiasm has waned. While the Sonic
Guide has quietly faded into history, the Mowat Sensor and Sonic Pathfinder
are still, as I understand it, both offered to some clients by the Guide Dog
Association of NSW/ACT. I know not, however, by what criteria an offer is
made. Nor do I know the situation in other states. I can appreciate the
frustration of mobility agencies. I also appreciate that dogs, while costing
vastly more than ETA's, do raise more money for them. It seems to me,
though, that more rather than less effort is required if effective ETA's and
teaching regimes for them are to be developed. This leads me on to a highly instructive discussion by the famous
neurologist, Dr Oliver Sacks, at the recent Andrew Olle Memorial Lecture.
Dr Sacks summarised the case of Virgil (not his real name), who had been
blind for many years (the case has been taken up by Hollywood in the film,
"At First Sight"). At the age of 45 or so, he underwent cataract surgery and
could see again. Did Virgil leap out of bed and run around the room when the
bandages were removed? Was he even pleased to be able to see? The answer
to both questions is no. He was extremely confused and disoriented. Dr
Sacks made the point that it is often assumed that we are born being able to
see. In fact, children learn to make sense of visual information over many
years. I'm not about to argue that any of the ETA's which have been produced or
which are under development provide anything like normal vision, even if
people often assume that I have limited sight when they see me moving around.
The most basic ETA, however, offers information which would not normally be
available to a blind person. I strongly suspect that many people who do not
persist with an ETA give up before they have learned to interpret its signals
at more than an elementary level. I remember "looking at" things with the
Sonic Guide during the first week of training. Yes, it told me a wall was
ahead, but I knew that already through quite effective echolocation. It
wasn't until I could integrate its signals into my other perceptions in more
complex situations that it became highly valuable. Nor will I argue that a blind person starting to use an ETA is in a
completely comparable situation to an adult who sees for the first time or
whose vision is restored after being out to lunch for many years. Sight adds
a whole new sense, whereas ETA's supply environmental information to existing
(hearing or tactile) senses. There is a similarity, however, in that in
either case one is trying to interpret and integrate a whole lot of new
signals. Importantly, vision is, at a neural level, only two dimensional and
people learn through various cues to see in three dimensions. A psychologist once commented to me that anyone who successfully used the
Sonic Guide had, at some stage, had some vision. The implication is that
vision, albeit limited, allowed effective interpretation of the environmental
information supplied to the ears. It's a nice concept, but I know people who
didn't have useful vision and find the Sonic Guide valuable. That's the
trouble with trying to study people - they're all so different! I believe
that psychologist was onto something, though. It is very likely that those
who make sense of signals from an ETA have a well developed spatial
awareness. I tried to measure this in a laboratory but, as they say, results
were inconclusive. All this discussion of ETA's and their relative merits to various people
is, I fear, about to become superfluous. Blindness agencies in Australia
alone collect many millions of public dollars. To my knowledge, not one of
those dollars contributes to research into vision substitution technology.
Nor have I heard anything from BCA on the issue, except informal comments
from office bearers that there is nothing we can do. Over the past couple
of decades, huge progress has been made in relation to blind people's access
to computers and, therefore, information. It seems obscene to me that, while
all that has been occurring, the vast majority of blind people in the
developed world still rely on the millennia old technique (albeit with some
modern materials) of using a rod to check for obstacles. Like Virgil, for many middle aged blind people the task of coming to terms
with vision or even visual substitutes can be very daunting. However, it
does not seem at all reasonable that future generations should be deprived
of truly effective mobility and environmental sensing aids. To that end,
blindness agencies and blindness advocacy groups must take this issue
seriously. I do not accept that money is not available. It could be if
agencies were genuinely interested in fostering independence rather than
dependence. I recently spent an exciting morning with Prof Kay and his latest
generation of ETA, the award-winning Kaspa. It is installed into a headband
rather than heavy spectacle frames. A couple of hours use suggest that the
discomfort issue mentioned earlier in relation to the Sonic Guide has been
largely resolved. While not your resident fashion consultant, I'd not be at
all embarrassed to wear it. It presents information in a similar fashion to
the Sonic Guide. However, some innovations should make it more immediately
accessible to a broader range of people and it can be used for a wider range
of tasks. A number of other people around the world continue to work on promising
projects. While they discuss, and even disagree on, aspects of their
research, they agree on one thing. That is the totally inadequate level of
available funding for this type of work. Further to my earlier comments
about funds raised by blindness agencies, I have heard recently of two
mobility agencies (neither in Australia) who have an embarrassing amount of
money sloshing about in their coffers. Will either of them contribute to ETA
research? One, with two hundred million greenbacks hedging against future
losses, has bluntly said no. The other one - well, let's keep fingers
crossed. And will Australian agencies, some having made more effort in the
past than most in the world, be prepared to try again? Possibly, but only
if blind individuals and groups are prepared to (a) lobby strongly for an
increased commitment and (b) provide ongoing constructive input and feedback.
In the past, agencies have largely worked with aids produced elsewhere. It
is quite conceivable, however, that they could take on an active role in the
development and refinement of aids. So, after all that, what does my crystal ball tell me about the future?
I can be fairly confident in predicting that dog guides will be a viable
option in at least the foreseeable future. This is partly because they offer
very effective and safe mobility. After all, while computer boffins struggle
to produce artificial intelligence, dogs offer the real thing. And, call me
cynical if you wish, but they are great fund raisers. What about the future
of ETA's or, to use Prof Kay's term, visual prostheses? Well, that's much
less clear. America is important, both in terms of potential funding and
candidates for aids. While politically powerful and reactionary blind people
there continue to hold sway, progress is likely to be difficult and slow.
It is time to bring the sociological inverted J curve into play. The concept
is that people do not rebel when they are badly off, but when they realise
that they are badly off. It seems to me that blind people, by and large,
accept that independent and enjoyable travel is the preserve of those with
reasonable vision. So far, ETA's have significantly improved both
independence and enjoyment of travel for only a very small number of blind
people. Those who persisted with the Sonic Guide and reaped the benefits now
run the very real risk of being considerably disadvantaged, as the aid is no
longer available and servicing becomes more problematic. If things are to
improve, we must start demanding and participating in research which will
lead to a range of aids which meet the needs of vastly increased numbers of
blind people. PRESIDENT'S OVERVIEW Michael
Simpson I am pleased to introduce the 24th Annual Report of Blind Citizens
Australia for the year ended June 30, 1999. We have had another good year,
and this report shows that Blind Citizens Australia continues to grow in
strength and achievement. We have pursued our mission and focussed on our core activities. We have
provided peer support, individual advocacy, systemic advocacy, information
dissemination and advice to governments and the community. Much of our
success can be directly attributed to our hard working, expert and dedicated
staff led by our Executive Officer, Bill Jolley. Our Branches and many
individual members have also played their part through various activities at
the local level. We were delighted with the success of the Blind Citizens Australia
Identity Card. The Identity Card has an equivalent status to a driver's
licence, and has met a growing need expressed by our members for
photo-ID. We have continued with some cross-disability projects this year. The DDA
Standards project is well established, but progress towards DDA Standards is
very slow. The Telecoms & Disability project was a new undertaking for
us, and we will continue this year to achieve strong outcomes for
telecommunications consumers with disabilities. Our leadership of these
projects is motivated by our belief that their positive outcomes are
critically important for people who are blind or vision impaired. We continue to support blind people in developing countries, although
Australia remains our clear priority. We have the capacity and expertise to
create change both at home and overseas, so we have continued our work in
Viet Nam and Fiji. Funding and management support for these two projects have
been provided by AusAID and ACROD respectively, and we value their support
and involvement. Plans are advancing well for the Fifth General Assembly of the World Blind
Union, and associated events, to be held in November 2000 in Melbourne. We
are taking the lead in organising this historic event, in partnership with
blindness agencies, with John Simpson appointed as the Event Organiser. The year was financially stable. We had strong and generous support from
our members, continuing support from the Commonwealth and Victorian
governments, and assistance from most blindness agencies. I want to thank
the Commonwealth Bank, Telstra, Ozemail and Cato Partners for their ongoing
support. We have finished the year with a surplus of $23,169. This is a good
result largely due to careful planning and attention to detail by our
Executive Officer. We face some uncertainty in the year ahead due in part
to policy changes by the Commonwealth Government in the funding of peak
bodies such as Blind Citizens Australia. I would like to thank our staff for their continued efforts, and our
members for their continuing loyalty and effort at a local level. I also
thank our Directors: Robert Altamore, Leighton Boyd, Lynne Davis, Helen
Freris, Kym Hand, Peter Johnson, Karen Knight, Tony Starkey and Sondra
Wibberley. They have all contributed to our achievements during the
year. Last year's Convention marked the retirement from the Board of Joan
Ledermann after twenty years of service as a leader and inspiration to so
many, including four years as President. We thank Joan for her commitment and
contribution, and I particularly thank her for her assistance to me as a new
member of the Board and as an inexperienced President. Joan Ledermann was the winner last year of the Blind Citizens Australia
David Blyth Award, a fitting tribute to her advocacy for Braille and her
strong contribution to advancing the cause of blind people over many years.
Certificates of Appreciation were presented to Pat Downie from Sydney and
Carmel Jolley from Melbourne. We record our congratulations to these two
people who are integral members of the backbone of Blind Citizens
Australia. I anticipate another year of high achievement as a new decade begins.
Blind Citizens Australia is a strong and dynamic national association of
blind people. We have an international reputation for excellence and
tenacity, and with your support I intend to keep it that way. It is a
privilege for me to lead Blind Citizens Australia as your President, and I
shall try hard to lead by example in "Changing What it Means to be
Blind". EXECUTIVE OFFICER'S SUMMARY William
Jolley Each year I start compiling the Annual Report a couple of months before
the Convention, but I never get it finished until the eleventh hour. I also
fail in my attempts to shorten the document, because there is simply so much
information to catalogue at the close of every year. With pride I look back
at what we have achieved, and I am well satisfied that Blind Citizens
Australia is a top organisation with strength, purpose, commitment and a
vital role in "Changing What it Means to be Blind". This summary cannot cover the whole range of activities carried out and
reported on for last year, so the following areas are highlighted: We can look back on another good year for Blind Citizens Australia. It
was a year of continued strong and committed leadership from Michael Simpson
as President, a year of growth in our organisation and continued branch
activity, a year of sustained effort from our staff, but a year that ends
with some warning signs of challenges ahead. In particular, the Government's
welfare reform agenda creates some uncertainty and the future of our
individual advocacy service is under a cloud. The direct service staff are implicitly recognised as we highlight the
work that they do, but we must not forget our administration staff. We have
been very well served by Sandra Knight, Cheryl Gration and Robert Mascitti.
We communicate with 2600 members in their preferred formats through Blind
Citizens News, SoundAbout magazines, the Convention notice and specific
information. This year we handled $750,000 and wrote 900 cheques. We
photocopy 150,000 pages per year and copy 15,000 cassettes. We could not
have done this without great teamwork by our administration staff led by
Sandra Knight, and without regular and reliable help from volunteers led by
Kylie Partington and Leighton Boyd. Individual Advocacy Aileen McFadzean led our individual advocacy work at national level. Back
from maternity leave, she picked up where she left off, and she has continued
to do an excellent job for members and others seeking her advice and
support. I consider that individual advocacy is the most important thing we do.
It is where we can touch people's lives and our intervention can make a
positive difference. It is regrettable that discrimination against people
with disabilities is still endemic, despite awareness-raising campaigns and
our own best endeavours. What's more, developments over recent years have
seen our tools for fighting discrimination blunted, so our resolve needs to
be strengthened. Let us never forget that discrimination against one single
person on account of blindness is discrimination against all of us who are
blind. The biggest change in the operation of the service this year was that we
supported some matters to the stage of a final hearing. This is a
significant change because it requires the preparation of documents including
affidavits, witness lists, preliminary applications and details about what
is being sought as an outcome from a hearing. It also includes gathering
evidence and legal research. We find that discrimination in employment and education continues to be
endemic. In fact, we think it is on the increase. Employment complaints are
increasing, although formal education complaints are quite low. We think
that this is due largely to the stress caused for families by discrimination
in education, and to the growing unfriendliness of the formal complaints
process. In 1997 I, along with several other members, lodged a DDA complaint
against the Office of Asset Sales and IT Outsourcing because the Telstra-1
Share Offer documents were not available in Braille or other accessible
formats. The complaint was not conciliated and still may go to hearing, but
good progress has been made. We received our Share Offer documents for
Telstra-2 in Braille and other accessible formats, but still we have no
guarantee that we will receive accessible documents in the future. Last June Bruce Maguire lodged a DDA complaint against the Sydney
Organising Committee for the Olympic Games (SOCOG) because he could not get
the Olympic ticket book in Braille. Mr Maguire gave SOCOG every chance to
rectify the problem, but to no avail. With our help he successfully obtained
an Interim Determination in the Human Rights and Equal Opportunity Commission
(HREOC) to prevent further disadvantage in the ticket allocation process,
whilst the substantive matters were investigated. SOCOG snubbed HREOC's
Interim Determination. The matter was heard in September and a decision was handed down quickly
by Commissioner Carter. It received extensive media coverage. Commissioner
Carter found that SOCOG had unlawfully discriminated against Mr Maguire in
failing to provide him with Braille access to the Olympic ticket book. Commissioner Carter found that SOCOG directly discriminated against Mr
Maguire, and stated that there was also a breach of indirect discrimination
law. He ordered that Mr Maguire be assisted by SOCOG in the purchase of
tickets in the second ticketing round, and implied that the ticket book
should be made available to Mr Maguire in Braille. Commissioner Carter fully
accepted the evidence brought by Mr Maguire and his witnesses, emphasising
that Braille is paramount for blind people as our literacy medium, and
totally discounted evidence brought by SOCOG: the comparative value of other
alternative formats and media, the onerous cost of Braille production, the
adequacy of the telephone help line for vision impaired persons, and the low
value of the Olympics as a sporting event for blind spectators. Of course we are delighted with the outcome of the Maguire case: a
convincing victory for Braille confirmed by mostly positive media coverage
and a high level of public interest. We thank Bruce Maguire for his courage
and tenacity in lodging the complaint against SOCOG and in seeing the matter
through to finality. Together with the Telstra-2 Share Offer Documentation
case, it seems that a precedent has been set for the provision of widely
available public documents in accessible formats. One of our most complex matters this year has been a series of cases
involving Marlene Massingham. Last November her seeing-eye dog was
unlawfully retrieved by employees of the Lady Nell "Seeing-Eye" Dog School
and Rehabilitation Centre. The School claimed that Marlene Massingham had
breached her contract with the School: she had changed her address without
notification, the dog was poorly kept and badly used. We advised Marlene
throughout this matter, starting with her successful injunctive action to
prevent the dog from being given to anyone else and to have it returned to
her care and use. The Lady Nell School proceeded with a court action to retrieve the dog
under the contract. Already, one of the School's employees had been
convicted and fined $1,000 for the assault of Marlene when taking her dog.
The School's court action was an abject failure. Judge Phelan found that
Marlene Massingham worked her dog well, and that the dog was kept in good
condition. He awarded costs and damages against the School. Every year we report on the range of social security issues which arise
for people who are blind or vision impaired. These issues relate to various
entitlements, more and more the treatment of compensation payments. Much
concern has been expressed over the year about proposals to change the
structure of disability pensions in Australia. Unfortunately, we are unable
at this stage to give reassurance about this issue, although we will fight
hard against any changes to the means test free status of the blind
pension. The matters I have covered provide an indication of the range of
individual advocacy which we undertake as part of the National Advocacy
Service. Individual advocacy is a vital part of our work, demonstrating the
difference we can make for individuals who request our help. More broadly,
individual advocacy informs systemic advocacy. For example, our work in
access to the environment and telecommunications is driven by a steady stream
of member complaints and queries. Membership &
Communication Membership growth this year took our numbers past 2650. Our Regional
Branches continued their work, with access to the built environment being a
common theme. With our official name change to Blind Citizens Australia, a new logo and
corporate identity were introduced. As part of this, a review of material
sent to prospective members and new members was undertaken. I thank Karen
Knight, with support from Maryanne Diamond and Sandra Knight, who did the
work to design and produce kits for prospective members and for new members.
These kits are proving popular, and they present a modern and professional
image of our organisation. We have continued to produce Blind Citizens News in multiple accessible
formats, and its high standard has been maintained by Lynne Davis as editor.
It continues to be a "must read" for many members, staff of blindness
agencies and officers of government departments. Our Horizons weekly radio program has continued to keep listeners apprised
of news and developments. We thank Neville Kerr for his continued
contribution as the program's producer and presenter. This year we
celebrated our 800th program with the introduction of a new theme from
"Future Road" by The Seekers, and we thank them for permission to use it. We also thank Barry Chapman who keeps our web page current, looking good
and
sounding great. Our arrangements for archiving Horizons on the Internet,
accessible through our web page, are now well established. Personally, I
find the Internet a very convenient environment for listening to
Horizons. External Relations We continue to maintain good relations with many national and
international organisations. Our leaders are associated with twenty
organisations, on most of which we are directly represented. In the
blindness field they are the Australian Blindness Forum, the Australian
Braille Authority, the Australian and New Zealand Blindness Agencies, the
Australian Council for Radio for the Print Handicapped, the International
Council on English Braille, the Round Table on Information Access for People
with Print Disabilities and the World Blind Union. Of course we maintain
bilateral relationships with the blindness agencies as well. We support the
employment by ACROD of a Policy Officer specialising in blindness, in
association with the Australian Blindness Forum. We also strongly support
participation by Australian and New Zealand Blindness Agencies in the DAISY
Consortium, doing our part to develop the standards for the production,
exchange and use of next-generation digital talking-books. We have continued our involvement in the World Blind Union, and this year
I attended an Officers' meeting in South Africa. I am grateful for the
privilege of representing Australia in WBU, and I shall continue to work hard
to make that involvement widely beneficial. Hosting of the Fifth General
Assembly and Second Blind Women's Forum in November 2000 in Melbourne is a
major undertaking, but an exciting prospect. It is a wonderful chance for
us to bring world-wide expertise and media attention together for the benefit
of blind people and service agencies throughout Australia. Our collaborative
arrangements with blindness agencies to organise these events are working
well, and we soon hope to be able to announce participation by the
Commonwealth and Victorian Governments. Finance Our income for the year was $751,485 and expenditure was $728,316. These
figures show a 20% increase over the previous year. We had a surplus of
$23,169. Our accumulated funds are $144,603, of which $86,692 is represented
by fixed assets. Last year we received $46,000 from blindness agencies, led by $20,000 from
Royal Victorian Institute for the Blind. This figure was down from the
previous year, because the Royal Blind Society contribution was late. We
thank those agencies for their financial contributions and for other in-kind
support which we appreciate. We received $23,536 from members through our
appeals and from the PACC program. We also made a profit of $8,000 on our
first national lottery, but these figures will show in next year's report.
This support from members is strong and very much appreciated. Further details of income and expenditure are given in the Annual Report,
and are provided for Braille readers in a separate volume. Services & Projects We continue to receive $165,000 per year from the Office of Disability for
the National Advocacy Service. We record our appreciation to staff of the
Office of Disability for their advice, support and cooperation. We have
continued to carry out our responsibilities as the peak body in the blindness
field, and we have worked constructively with kindred organisations of people
with disabilities. We receive $69,000 per year from the Victorian Government for our
State-wide advocacy and information service. Our priorities this year have
been pedestrian access and forums in regional Victoria. The work has been
led by Maryanne Diamond who joined our staff last November. We convene and host the DDA Standards Project with funding of $105,000 per
year from the Attorney General's Department. Overall progress on DDA
Standards has been disappointing. The Transport Standard moved a little
closer to adoption, and we do hope for good news by year's end. We are also
encouraged that the Government has amended the DDA to allow for a Disability
Standard on Accessible Premises. Last year we received a grant of $100,000 from the Department of
Communications, Information technology and the Arts for the
Telecommunications & Disability Consumer Representation project. This
is an important piece of work for us, because telecommunications are of
fundamental importance to blind people. We are pleased that funding has
continued for another year, and that Gunela Astbrink has joined our staff as
the new Policy Officer. We have made good progress on our project Researching Enhanced Audio With
Digital Television. John Simpson has led this work, with technical support
from Dale Simpson. The final report will soon be available, demonstrating
the extent of deprivation experienced by blind television viewers and
providing suggestions for the future. We have made very good progress with our project "Making E-Commerce
Accessible" for which the research has been carried out by Tim Noonan. His
discussion paper has just been released, full of background information and
identified problem areas. We were very pleased to learn that the Attorney General has requested
HREOC to conduct an inquiry into the impact of electronic commerce and new
technologies on people who are older and people who have a disability. Due
to the extent of the work we have been conducting in the areas of E-Commerce,
digital radio and television and telecommunications technologies, we are in
an excellent position to provide major input into this inquiry. We continue to support the United Blind Persons of Fiji to raise funds in
Fiji and develop the organisation. Last year our $1,000 contribution was
matched by $2,900 from AusAID. UBP has used this money to employ a part-time
fundraiser, publicise the organisation and hold forums for its members. Last
year we provided UBP with an office computer, and recently it received a
grant in Fiji for a JAWS screen reader. We are now at the end of the three-year teacher-training project in Viet
Nam. We have supported teacher-training courses in six provinces and Braille
literacy classes in sixty districts. All trainees have learned to read and
write Braille as the top priority, with attention also being given to
mobility, daily living skills and vocational training. Our Vietnamese partner is the Viet Nam Blind Association (VBA), and we
have developed a very good relationship with this organisation. I make
monitoring visits to Viet Nam twice a year, and I appreciate the partnership
with VBA and the support of its leaders. Our representative in Viet Nam is
Miss Tran Dan Phuong, and she is my interpreter and guide when I visit. Miss
Phuong has worked for Blind Citizens Australia for five years now, and she
continues to do a very good job. With 125 teachers trained and more than 1000 blind people receiving the
gift of literacy through Braille, I am well satisfied that our work in Viet
Nam is making a real difference to blind people. I express appreciation to
AusAID for providing funds and to our Vietnamese partners who contribute to
the success of the project. I thank Helen McAuley from ACROD for her
administrative support. Especially I thank Miss Phuong for her excellent
work and attention to detail. Summary As we come to the end of the year we can look back on many achievements:
the identity card, the new publicity and welcome kits, our new name, and some
advocacy successes. Our communication media are strong and we are making
good use of the Internet. But we must recognise some challenges ahead: our
growth outstripping our funding, the demand for our advocacy growing by
volume and complexity of issues, the Government's emerging welfare reform
agenda and the constant battles to maintain employment and manage the new
technology. Access, to the built environment and to cyberspace, is emerging
as a national priority. I thank our President, Michael Simpson, for his support and advice to me.
I continue to be impressed by and grateful for his mature and committed
leadership of Blind Citizens Australia. I thank my wife, Carmel, for her
support this year. I thank my close friends for their encouragement. I have pride and satisfaction in commending to you the Annual Report for
1999 of Blind Citizens Australia. The Company Secretary reports that three members were reappointed to the
Board of Directors of Blind Citizens Australia. They are Peter Johnson, Helen
Freris and Leighton Boyd. Sondra Wibberley and Kym Hand retired as
Directors. The proposals to revise the Memorandum and Articles of Association were
approved by the members. As a result: CONVENTION "99 - A FIRST-TIMER'S PERSPECTIVE Jessica
Richards This year several young people, including myself, were able to attend our
first Convention under the Leadership 2000 scheme. I found it an exciting and
a thought provoking experience and I was able to take away much that I can
use in my community. To begin with, I felt the newby's mix of anticipation and anxiety. Could
I manage to get around in a totally new environment? And would I be able to
make some mature contribution to the discussions? Before we left home we were
told unequivocally to "get in there and participate". It was the last thing
I wanted to do. I thought "sit at the back and observe the experts" would be
far more appropriate. But by participating I gained much that I would not
have gained any other way. I found being in an environment which was designed to enhance my access
rather than limit it was extremely liberating. The hotel staff were
particularly good at both asking whether I needed help before giving it and
giving it appropriately when I needed it. For this we can thank the Brisbane
Branch who did much to train and prepare both the staff and volunteers before
Convention. I also enjoyed having appropriately formatted materials. I often
feel isolated in large groups and gained a lot from BCA's roll call
procedure. Each person in the room was asked to give their name before most
meetings. It seemed rather awkward when there were over 100 people on the
convention floor, but having much the same knowledge of who was there as
sighted people have gave me more freedom to express my opinions. The women's forum, held at the Gazebo Hotel on the day before Convention,
had as its theme "The importance of caring for yourself". I found the
sessions on women's health and leadership very informative and I especially
enjoyed talking about make up and clothes with other vision-impaired women.
These are areas that have concerned me greatly. The main convention consisted of discussions about new adaptive
technologies, access, and current government policy. I learned a lot. The
convention business meetings taught me a lot about the way BCA works. Having
the opportunity to participate as a voting member in the decision making
process gave me a deep appreciation of the complexity of the decisions that
are made by our leadership. I am grateful to everyone who has worked over the
last 25 years to bring BCA to its current peak position in the blindness
field. Social events were also an important highlight of the convention and I'm
sure that many returned to work a little worse for wear on Monday morning.
This year the convention dinner was combined with the annual White Cane
dinner held in Brisbane. Graeme Innes was awarded the David Blyth award and
we were therefore able to celebrate the advances blind people have made
towards access and equality. Sadly the dinner also gave us an opportunity to
reflect on the ways ignorance and thoughtlessness by groups in our society
still impinge on our wellbeing and our enjoyment of many social occasions.
I am still a student and employment is an area of concern to me. I really
enjoyed talking with many people who do a variety of jobs well and it has
increased my confidence. I think, on behalf of all the high school and
tertiary students in BCA, I can urge everyone to think carefully about our
next issue of BCA News, which is on employment. Your ideas and your positive
and negative experiences will help us immensely. I also gained a lot from being able to discuss access problems in my
community with other blind people. I have been frustrated by the ways many
of us manage to combine committee work with our busy lives and seem to create
positive changes until a couple of years pass and once again the pavements
are cluttered with sandwich boards and clothing racks and appropriately
formatted materials become hard to come by. To misquote, it seems that the
price of access is "eternal vigilance". I am now more aware of what has been
achieved in other towns and cities and of what BCA's current guidelines are.
I hope this will help me pursue more positive change at home. I have gained a lot from the Leadership 2000 program and would like to
thank everyone who made it possible. RESOLUTIONS ADOPTED AT CONVENTION
"99 The following is a summary of the resolutions adopted at this year's
convention. Please contact the national office if you require a full text of
the resolutions. 99.1 Blind People in East
Timor Resolved that Blind Citizens Australia: 99.2 Employment in Blindness
Agencies Resolved that Blind Citizens Australia, through its National Policy &
Development Council, should establish a working party to: 99.3 Postal Concession for
the Blind Resolved that Blind Citizens Australia should: 99.4 Accessibility of Public
Documents Resolved: 99.5 Braille Codes Resolved that Blind Citizens Australia should support the recommendations
of the Australian Braille Authority made in April 1999 that: 99.6 Copyright Resolved: 99.7 Welfare Reform We note that the Commonwealth Government has placed "Welfare in the 21st
Century" on its Reform Agenda. We also note the Government's stated concern
that the number of Disability Support Pension recipients is growing steadily
and is set to overtake the number of registered unemployed people within a
few years. We also note that this growth rate does not apply to blind
pensioners. This Convention calls on the National Policy & Development
Council of Blind Citizens Australia to monitor closely the community debate
on these matters, and to encourage and empower Members, Branches and
Organisational Members to participate as appropriate. This Convention
confirms the long- standing and well-developed policy position of Blind
Citizens Australia that the blind pension must be retained free of the income
and assets test, and non-taxable, and that there are substantial community
benefits from this arrangement. We urge other disability groups to see the
blind pension as a benchmark to work towards, rather than as a tall poppy to
cut down. 99.8 Advocacy Services Resolved to request the Board of Directors of Blind Citizens
Australia: 99.9 Uniqueness of Blind
Citizens Australia Resolved that Blind Citizens Australia shall maintain its separateness and
autonomy as Australia's national association of the Blind. We note the
Generic Outcomes inserted into the contracts of all national peak bodies
funded by the Commonwealth Department of Family and Community Services; in
particular, Outcome Three: "Work together with other relevant peak bodies and
with FACS, to streamline and simplify the present range of interests and to
achieve a reduction in the number of funded organisations". We confirm our
commitment to participate actively as a member of the National Caucus of
Disability Consumer Organisations, ACROD and the Australian Blindness Forum;
and we confirm that the development of strategic partnerships with other
organisations is appropriate. We stand proudly on our record of high
achievement since 1975 for people who are blind or vision impaired, as a
specialist self-help organisation providing advocacy and information for
Australia's community of people who are blind or vision impaired. 99.10 Dog Guide
Agreements Resolved: 99.11 DDA Standards Resolved that Blind Citizens Australia: 99.12 Education of Deafblind
Students Resolved that Blind Citizens Australia nationally, and its Branches and
Organisational Members as appropriate, make representations to the
Commonwealth and State/Territory Ministers for Education seeking improvements
in educational services and opportunities for students who are deafblind. 99.13 Seniors who are
Deafblind Resolved that Blind Citizens Australia request its Branches and
Organisational Members as appropriate to work more closely with relevant
organisations in their States/Territories to improve the range and quality
of services for seniors who are deafblind. 99.14 Recognition of
Deafblindness Blind Citizens Australia
invites the Australian Deafblind Council to join with it to call on the
Commonwealth Government, and the Australian Institute of Health and Welfare
in particular, when considering classification of disability types and their
descriptions to specifically recognise deafblindness. We assert that such
recognition of deafblindness must be written into relevant legislation,
referring to the specific needs of deafblind people being different from
those of people with a single sensory loss. Furthermore, this Convention
requests Branches and Organisational Members of Blind Citizens Australia to
work for the implementation of this resolution with their relevant State or
Territory Governments. From time to time people have complained about the use of the term
"dog guide" (see, for example, the letter from Louise Pearson in
this issue). The following explanation of the use of the terminology was sent
by Bill Jolley to the vip-l internet mailing list and is reproduced here for
the wider readership of Blind Citizens News: In Australia dogs for guiding blind people are produced by various Guide
Dog Associations in Melbourne, Sydney, Brisbane and now Adelaide. Also,
"Seeing-Eye" Dogs are produced by the Lady Nell organisation, with a base in
Melbourne, offices in a number of States and a very active division in
Queensland. It is out of recognition of and respect for the legitimacy
of the Lady Nell organisation that the term "Dog Guide" is used when
referring to ALL dogs used for the purpose of guiding vision impaired
people. Are we mostly concerned, as blind people, with what kind of dog we are
using or what kind of guide we are using? That is, a "guide dog" means that
the word "dog" is the noun and the word "guide" is the adjective, to be
compared with a "hearing dog", a "police dog", a "guard dog" or a "pet dog".
On the other hand, "dog guide" means that the word "dog" is the adjective and
the word "guide" is the noun, to be compared with a "sighted guide", a "sonic
guide", etc. As a blind person I am much more concerned about what sort of guide I
have, rather than what sort of dog I have. Accordingly, I think that a "dog
guide" is more important to me than a "guide dog", notwithstanding from which
organisation I may have obtained my mobility aid. Finally, I would want the
particular agency to think about me more importantly than the dog; that is,
the dog is there to guide me, rather than me choosing among different dogs
the one which will act as my guide. This is a question of where the emphasis
is placed and for too long we as blind people have let the big agencies
control the language to suit their public relations programs. I don't mean to be facetious, but simply to confirm that the term "dog
guide" is used for good reason and without any cultural cringe. There is a new contact arrangement for people with a disability when
getting in touch with Centrelink. As a result of lobbying from the
disability community over concerns about Centrelink's phone management system
the National Disability Advisory Council worked with Centrelink to implement
a separate 13 number for Disability Support Pension (DSP) recipients. On
calling this number you go straight through to a Customer Service Officer.
Of course there are still delays but they are far less than with the general
contact number. The Customer Service Officers are located within the general call centres
around Australia. However, they are located in a separate unit within those
centres and they receive specific training on disability awareness and
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Blind Citizens News accepts material in the following categories:
For greatest impact, why not consider sponsorship of an entire issue of Blind Citizens News? For $800 you will obtain:
Blind Citizens News is published four times a year and is now read by more than 3000 people with a direct interest or involvement in the services and facilities available to Australia's blind and vision impaired population. We circulate 800 large print, 1000 audio, 200 Braille and 50 electronic (computer disk and email) copies to members, libraries, service agencies, government departments and equipment suppliers throughout Australia. Blind Citizens News also appears in full on the internet website of Blind Citizens Australia.
For further information please contact the Editor.
ARTICLES FOR THE NEXT ISSUE OF BLIND CITIZENS NEWS
The theme for the next issue of Blind Citizens News is "Employment, Underemployment and Unemployment". The closing date for the issue is Friday, December 17, 1999. Articles, letters and other contributions should be sent to Lynne Davis at the Blind Citizens Australia Office, in large print or in electronic form (disk or email attachment). If you would like to discuss your ideas for a possible contribution please call Lynne on 02-9438-5675 or send her a message via the Office.
For the latest information from Blind Citizens Australia tune in to Horizons on your RPH station, on a Community Station near you, or over the Internet. Horizons is broadcast regularly on RPH stations. It is also becoming available on Community Stations, but you may need to contact your local station to ask it to receive Horizons over the Community Radio Satellite.
HORIZONS BROADCAST SCHEDULE
Canberra
1RPH 1125 kHz
11.15 am Tuesday;
repeated 8.00 pm Tuesday and 9.30am Saturday
Sydney
2RPH 1224 kHz
3.00 pm Wednesday;
repeated 8.15 pm Saturday
Melbourne
3RPH 1179 kHz
8.30 pm Wednesday;
repeated 6.30 pm Sunday
Brisbane
4RPH 1296 kHz
6.05 pm Monday;
repeated 7.00 am Friday
Adelaide
5RPH 1197 kHz
9.15 pm Wednesday,
repeated 6.00 pm Friday
Perth
6RPH 990 kHz
10.30 am Friday;
repeated 5.30 pm Saturday
Hobart
7RPH 864 kHz
12.30pm Friday
Mildura 3MPH 107.5 MHz
8.30 pm Wednesday,
repeated 6.30 pm Sunday