Parent News
November 2006

Editorial

Hello everyone and welcome to the last edition of Parent News for 2006. This year has passed at a phenomenal rate and we are once again at the time of year where we thrive on a public holiday based purely on horseracing, Christmas is very much on our mind and the barbie gas bottle is ready to be fired up.

It has been a busy time in the BCA National Office, particularly in Victoria, with the planning and running of the Victorian/Tasmanian State Convention which was held from the 20th-22nd October at the Peninsula Motor Inn, Tyabb (located 15kms outside of Frankston). This was a very productive weekend, with a session focusing on the development of the new public transport ticketing system and how this will affect individuals who are blind or vision impaired, discussion regarding the development of Victorian standards for safety at pedestrian railway crossings and sessions which focused on relationships, diversity and BCA related policy. Keep your eye on the BCA website, as streaming of the convention will be up soon.

As usual, this issue has been jam-packed with lots of tid-bits including information about the upcoming Victorian State election and the introduction of e-voting, and study tips and tricks to ensure that the whole family survives the very stressful exam period. And to ensure sanity in between all this, a number of great events throughout Victoria have been included in the "What's On" section. The usual segments are also in place to ensure that you are up to date with the latest in sport, technology and entertainment.

Finally, I would like to wish all of our readers a wonderful Christmas (even though it still feels very far away) and a well earned break.

Jessica Zammit
Editor

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Contents
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What's On

Oct 31- Nov 11
Melbourne Cup Carnival Live Site
Fed Square will come to life with the buzz of Flemington. Highlights include the Emirates Melbourne Cup Parade, fashion, racing panels, autograph signing sessions, children's activities, giveaways, live racing coverage from Flemington and much more. All activities are free. Phone 1300 727 575 or visit www.vrc.net.au.
Nov 1-Dec 17
Free 2B Me - Maroondah Youth Services
FREE 2B ME offers young women aged between 12-14 the opportunity to boost their self-esteem and make new friends by taking part in activities such as aerobics, yoga, healthy living, cooking and much more! Held at Arrabri Community Centre during Term 4, this FREE program is for girls living, working or studying in Maroondah. Places are limited so call (03) 9298 4373.
Nov 8
First International Online Symposium on Diabetes (10.00am-3.00pm PST)
This symposium organised by Helping Hands for the Blind and The Accessible World Symposiums will focus on various drugs available to control diabetes, a presentation by an endocrinologist from UCLA and a discussion on research and trends in diabetic care. This will be followed by audience discussion. To access the online conference room, go to www.accessibleworld.org and select the Auditorium link. Inquiries: boacosta@pacbell.net
Nov 13
Timothy McCallum - A Road Less Travelled @ The Famous Spiegeltent, Arts Centre Forecourt, 11.30am - 1.00pm.
Tim McCallum, despite suffering a paralysing accident at the age of 18, has become one of Victoria's most respected singers. As part of Spinal Cord Injury Awareness Week, he will perform his one man cabaret for one show only.

Come and hear his inspirational musical story of beating the odds. Admission is free. Bookings: Anita @ Paraquad Victoria on (03) 9418 0415.
Nov 14
Christmas Shopping Bus Tour - Vision Australia. Cost $6.
Come along and find yourself a bargain at the Direct Factory Outlets on Bulla Rd, Essendon. The bus leaves Vision Australia's Essendon Centre (corner Lawson St and Albion St, Essendon) at 10:00am and will return at 3:30pm. Places are limited so ensure to book. Inquiries: 9370 6111.
Nov 15
Geelong Branch - Lunch with Werribee Members
This event begins at 10.30am and will be followed by lunch in Werribee. For more info contact Bob on (03) 5248 7407.
Nov 17
Club Wild Karaoke Dance Party - 7pm-10pm
This event is being held by Club Wild in conjunction with Joint Councils Access for All Abilities (JCAAA) at Melbourne Bowling Club, Windsor. Tix $10, carers free. Please note that this is an 18+ event, with patrons to provide their own attendant care if required. Inquiries & bookings: JCAAA (9209 6572)/Club Wild (9326 9970).

Support Skills Program Try Day - Vision Australia
This half day is for prospective students to meet staff and experience some aspects of the program at the Burwood school. Inquiries: Garry Stinchcombe on 9808 6422.
Nov 17-19
EGames & Entertainment Expo - Melb Exhibition Centre
It's a solid weekend of gaming action as game companies and game players come together to check out what's new and exclusive in the world of eGames, handheld and electronic entertainment, as well as play games and win prizes. Please note that this expo does not exclusively focus on accessible games. Admission: $16 adults/$13 concession. More info: http://www.egamesexpo.com.au/
Nov 19
Seeing Eye Dogs Australia Open Day, Kensington
Come and meet some of the adorable little critters who will one day be responsible dog guides, whilst enjoying training demonstrations and a BBQ. Info: (03) 9381 6400.

Open Garden - Afternoon with Guide Dog Puppies at Manorhina Estate, Narre Warren East
Enjoy a stroll around the beautiful Manorhina Estate garden and vineyard. You'll have the opportunity to meet Guide Dogs and puppies and to sample the 2003 to 2005 Manorhina Pinot Noir vintages and 2005 Rose vintage. A sausage sizzle as well as tea and coffee will be available with proceeds supporting the work of Guide Dogs Victoria. Info: (03) 9854 4444.
Nov 20
Geelong Branch - Tour of Point Nepean National Park
Join the Geelong Branch on a tractor ride around the Point Nepean National Park and enjoy the audio description as you learn about the fortifications. This will be followed by lunch at the Sorrento Pub and a ferry trip returning to Geelong in the afternoon. To be part of this great day trip, contact Bob on (03) 5248 7407.
Nov 22
JAWS Workshop - SVRC
Designed for VTs, aides, teachers and parents, this workshop focuses on teaching children how to use the JAWS Software. BYO Laptop. Inquiries: (03) 9841 0242 or email svrc@svrc.vic.edu.au
Nov 23
Workshop on the new Unified English Braille Code
Aimed at VTs, aides and teachers this is one session not to miss. Inquiries: (03) 9841 0242.
Nov 24
SVRC Educational EXPO - 10.00am to 3.30pm
This big event will be held at the Statewide Vision Resource Centre, Donvale. No need to register - just turn up on the day! Inquiries: (03) 9841 0242
Nov 25
Victorian State Election
www.13vote.com.au
Nov 25 - Dec 3
Great Victorian Bike Ride
Vision Australia and Blind Sports Victoria are supporting a team on the 2006 Great Victorian Bike Ride, which will make their way through Victoria's north-east region. Experienced long distance cyclists with their own tandems and front riders are encouraged to attend. Inquiries: Diane Hayward on (03) 8872 7000.
Dec 2-16
Audio Described Performances - Victorian Arts Centre
Interested in seeing Turandot, Tomfoolery, Julius Caesar or The Marriage of Figaro? These four plays are being presented at the Victorian Arts Centre and will be audio described. Inquiries: Vision Australia on (03) 9864 9331
Dec 4
Ferry Trip: Southgate to Williamstown - Geelong Branch
This is another great event run by the Geelong Branch, cruising the waters from Southgate to Williamstown. This will be followed by lunch at the Williamstown RSL. More info: Bob on (03) 5248 7407.
Dec 14
Geelong Branch - Christmas Break-up lunch
Inquiries: Bob on (03) 5248 7407.
Dec 21
Term 4 Ends
Dec 22
BCA National Office Closes
Dec 24
Christmas Eve - Vision Australia's Carols By Candlelight
http://www.visionaustralia.org.au/info.aspx?page=1220
Jan 8
BCA National Office Reopens
Jan 15-28
Australian Open 2007
Be part of the action as Melbourne Park plays host to the world's best tennis players in the first Grand Slam event of the year. Series packages and single session tickets are now on sale, with ground passes available from Dec 1. Bookings: Ticketek 1300 888 104 or ticketek.com.au

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YBCV - The Ins & Outs

In this edition, we speak with Mick Curran, now ex-President of YBCV about the structure of the new committee as well as external projects he has been working on.

Jessica: What is the latest update on YBCV?
Mick: YBCV has had its Annual General Meeting (AGM) on the 19th of August and we now have a new YBCV committee. The members of the committee are Chris Bertuch as President and Debbie Yuile who has been re-elected as Secretary. We've also had a first for YBCV with a member, Lauren Hayes, accepting a duel role as Vice President and Treasurer. Melissa Ryan has also joined as a general committee member, which is great as it's the first time she has been on the committee and we are seeing new people coming on.

How many general members can the committee have?
The YBCV Committee can have up to three general members. So far there are another 2 positions that are vacant that people can take up if they are interested.

Are there any prerequisites that a person needs to meet to become a committee member?
To be a general committee member, you need to have been a member of YBCV for the last three months (there is no membership cost to join YBCV, however you do need to be a full member of BCA) and be between the ages of 18 and 30. If anyone is interested in becoming a general committee member, they can contact Lauren Hayes, Vice-President on 0434 122 181 or email lhayes@giant.net.au

Will you continue to be involved?
I've been in the YBCV committee in some capacity since 2003 and I feel its time for me to take a bit of a break. However, I will still be an active YBCV member and I am looking forward to still participating in events or sessions that YBCV will hold in the future.

What events have been held in the last few months?
The last event was a walk through the Dandenongs and this activity was held in conjunction with some people from the Retina Australia Youth Group (Retina Australia Vic Inc is an organisation which provides support and information to individuals with retinal dystrophies). Inadvertently we ended up at the Upwey Community Centre where we were treated to some poetry reading which was an unexpected surprise!

Tell me about some of the projects you have been working on outside of BCA?
I've always had an interest in Computer Programming and part of my life is completing a Bachelor of Computer Science at Monash University, Clayton. One of the projects I have been working on with James Teh (in Queensland) is a screen reader for Windows which is called Non-Visual Desktop Access. The difference with this screen reader is that it is both free and open source, which means that the code to write the program is available to anyone to read or change so they can add their own features or fix problems.

What are some of the features of this screen reader?
Some of the features are that it allows you to navigate around Windows by object, or navigate around the current window by line and character, without moving the system focus; it reports edit changes in documents and edit fields etc (characters being added and removed) and that all information (such as the properties of an object, messages, window text) can be configured to have a specific rate, pitch, volume, voice, or even sound. As this is still in the development stage, we need user feedback from people who have some knowledge of computers as well people who would like to try this out, as this will help us to make it better. However we warn that the screen reader may not be compatible with all computers so some patience is needed! It is always being updated so keep an eye out. We would envisage that by the end of this year a stable release will be available.

The screen reader can be accessed at http://www.kulgan.net/nvda/. To provide feedback on the screen reader, please email mick@kulgan.net

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BCA Developments

Access to Health Services
The major issues confronting people who are blind when accessing health care services are access to information and access to premises and services. In response to these issues, BCA has published a document titled 'Access to health services for people who are blind or vision impaired'. This document delivers important information on access issues for both health care professionals and people who are blind or vision impaired. This can be accessed via the BCA website at
http://www.bca.org.au/natpol/#Health or alternatively, you can call head office on 1800 033 660 to request a copy by post.

BCA encourages parents to read this document and to pass it on to their children's health care professionals. The more the health profession knows about the issues confronting people who are blind or vision impaired when accessing health services, the better the chances things will improve.

Safer Streets: A guide to public access advocacy for people who are blind or vision impaired

BCA has recently published a self-advocacy document aimed to inform people who are blind or vision impaired on how to self-advocate on issues relating to public access. The contents of the document includes: Access to public places - What are my rights?, Obstructions - Dangerous things in public places, Building better streets - Asking for changes to make the streets safer and how to make a complaint with an anti-discrimination body. The document also contains hypothetical case studies, sample advocacy letters and letter writing tips.

The plain text HTML version of Safer Streets is located on the National Policy Page under section 6. Access to Transport, Travel and the Built Environment. There is a link on the HTML version to download a large print copy of the document. The principal author of this document is BCA policy volunteer, Leah Hobson. We would like to sincerely thank her for her hard work with this document. For copies of Safer Streets in other accessible formats, please contact BCA head office.

Disability Support Pension (DSP) (Blind): Questions and Answers (Q&A)

BCA has compiled a simple DSP Blind Q&A Sheet that covers the major issues to do with the pension. These issues include the rates of DSP Blind, eligibility criteria, implications of overseas travel and matters to consider at retirement age. Please note that this Q&A is only a guide. BCA recommends that you contact Centrelink on the numbers contained to ensure that the information contained in this paper has not changed. This is available from: A copy of this document is available on our website: www.bca.org.au/natpol/#Welfare_DSP_Blind. Alternatively, you can call head office on 1800 033 660 to request a copy by post.

Accessible Voting - Victorian Trial of Electronic Voting

BCA asserts that blind and vision impaired citizens should have access to an independent, secret and verifiable vote at all Federal, State and Council elections. In January 2005 BCA made a submission to the Victorian Parliament's Scrutiny of Acts and Regulations Committee Inquiry into Electronic Democracy advocating for Electronic Assisted Voting (EAV) to enhance democracy for people who are blind or vision impaired. We were pleased to hear in July 2006 that electronic voting will be trialled at the upcoming State election in November.

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Victorian State Election -
electronic voting

Source: http://www.vec.vic.gov.au/electronicvoting.html Last accessed Oct 27, 2006

Editor's Note: Following on from 'BCA developments' this article explains the process of electronic voting in more detail.

If you are vision impaired and unable to vote independently, you can vote electronically at an E Centre. You can vote electronically on election day (Saturday, 25 November) or you can vote before election day from Monday, 13 November. Electronic voting is only available for people with vision impairment who are unable to vote independently.

Background on electronic voting

In 2005, the Victorian Parliament's Scrutiny of Acts and Regulations Committee concluded an inquiry into electronic democracy. This included electronic voting. The VEC made a submission to the Committee, suggesting the introduction of a pilot of electronic voting kiosks to enable secret voting for people with vision impairment, motor impairment or low proficiency in English.

Legislation to allow electronic voting was passed by Parliament in July 2006. The Electoral and Parliamentary Committees Legislation (Amendment) Act 2006 restricts electronic voting to voters "who because of a visual impairment cannot otherwise vote without assistance."

What is electronic voting?

Voting electronically involves using a computer with a touch-screen, keypad and headphones. If you choose to use headphones, voting instructions and options are read to you. You can also choose to have instructions and candidate options displayed in large text or small text, and with white text on a black background or black text on a white background. An election official can set these options for you or you can choose them for yourself.

After your name is marked off the roll:

In place of a ballot paper, you receive an "electorate card." The electorate card is encoded with your electorate details, along with any display and audio options you request when your name is marked off the roll. No personal details are recorded. There is no way to identify a voter through an electronically cast vote.

Take your card to a voting kiosk and insert it into a reader to the left of the monitor. This activates the process and ensures that the correct ballot papers appear on the screen.

Follow the instructions to navigate through the screens and cast your vote. The computer will first provide instructions on how to use it, along with options to change display and audio options.

Vote by following these steps:
  1. Select candidates in your order of preference for the Lower House then the Upper House
  2. Review and then verify your selections for the Lower House and Upper House as they are presented back to you
  3. Cast your vote after you have verified your selections

After you cast your vote, remove your electorate card and return it to an election official.

After the election closes at 6.00pm on Saturday 25 November, your ballot papers are printed by the VEC and included in the count.

Electronic voting is entirely voluntary. You can quit the system and ask for paper ballots at any time before you cast your vote electronically. If you quit the system, you must return your electorate card to an election official.

Is electronic voting secure?

Hewlett-Packard, in partnership with Scytl Secure Electronic Voting, designed the software for electronic voting. The system includes a number of security features to ensure that your vote is accurately recorded and stored safely. These include:

Only authorised VEC staff are able to view votes. This can only happen at the end of the election and must involve at least two election officials present together.

The VEC is piloting electronic voting at six E Centres around Victoria at this November's election (All E Centres are fully wheelchair accessible). The VEC will seek feedback from users after the trial to assess its use. These centres are located at:

Ballarat - Vision Australia, 1300 Howitt Street, Wendouree

Heidelberg - Olympic Leisure Centre, 15 Alamein Road, Heidelberg West

Kooyong - Vision Australia, 454 Glenferrie Road, Kooyong

Melbourne CBD - Melbourne Town Hall, Cnr Collins & Swanston Streets

Shepparton - Vision Australia, Cnr Archer Street and Channel Road, Shepparton

Warragul - Vision Australia, 2A Mouritz Street, Warragul

Early voting hours of operation:
Monday, 13 November to Friday, 24 November (weekdays) 8.30am to 6.00pm
Saturday, 18 November 9.00am to 2.00pm
Thursday, 23 November 8.30am to 8.00pm

Election day hours of operation:

Saturday, 25 November 8.00am to 6.00pm

Assistance is also available to enable you to vote if you do not wish to vote electronically. The VEC has been working with disability groups and culturally and linguistically diverse groups to make voting centres as accessible as possible.

Election officials:

Any election official can help you on election day. Those wearing a maroon vest with an"i" are best able to provide assistance. An election official can also assist you to complete your ballot paper, or you may feel more comfortable asking someone you know to help. The person assisting is to help you complete the ballot paper in accordance with your wishes.

Magnifiers and maxi pencils:

Every voting centre has magnifiers and maxi pencils to help. If you would like one of these, just ask an election official.

State election hotline: 13 VOTE (13 86 83)

State election website: www.13vote.com.au

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Victoria's Youth Website Is Roving For Reporters

Source: www.youthcentral.vic.gov.au

Youthcentral is looking for enthusiastic and active young people from across Victoria to join their Roving Reporter Team.

Do you want to develop your writing skills and expand your published portfolio? youthcentral, the Victorian Government's online youth initiative, can help you gain industry experience in writing, editing, research, IT and multimedia which could assist you with further study or career opportunities!

Being a Roving Reporter provides you with the opportunity to:
-Produce local and general news stories,
-Interview young people from across the state,
-Create podcasts for the site, and
-Review new music, movies, books and games.

The Roving Reporter positions, open to people aged 16 to 25, are for a term of six months starting in December 2006. During this time you will be required to:

TO APPLY: Email your name, postcode, date of birth and a short sample (max 400 words) of your writing to youthwebsite@dvc.vic.gov.au by November 10, 2006.

MORE INFO: Visit www.youthcentral.vic.gov.au/join or contact Vivienne Browne or Nigel Preston on 9655 6055.

youthcentral is the Victorian Government's website for young people aged 12 to 25. It includes information about jobs & careers, services & events in your local areas, study, travel, money and more.

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Exam Survival - Dos and Don'ts

Editor's Note: One such 'Roving Reporter' for youthcentral, Sophie, compiled the following do's and don'ts for exam preparation, bringing back long (purposefully) forgotten memories of mathematical formulaes, psych terms and long long nights of studying...hope this helps!

Source: Adapted from Youth Central, written by Sophie, last accessed 2 Nov, 2006 URL: www.youthcentral.vic.gov.au

Settle down kids, it might be exam time but there is no real cause for alarm. While it is unlikely that you will look back on those weeks of swatting with great fondness, exam time is totally survivable and you will get through it.

In my student career so far I have sat somewhere between 40 and 50 exams. I have lived to tell the tale as well as compile the following list of study dos and don'ts. Here's some tips to help you achieve more and freak out less as you prepare for your exams:

DO study at the library
There are so many more distractions at home. Go to the silent study area where all the really studious people hang out. Most of the library procrastination options (texting, snacking, listening to your MP3 player) still involve a tiny amount of noise.

Studious people in silent study areas have freakishly sensitive ears, however, and they will glare at you or kick you under the table if you so much as breathe too loudly. You are likely to end up studying out of either fear or sheer boredom. There is only one real distraction at the library - books. Try to sit in a subject area where the books are either thoroughly dull or incomprehensible. I recommend the foreign language and pure maths sections.

DO take regular breaks
Just because you are staring at a book for an extended period of time does not mean you are absorbing information. I usually study for 45 minutes and then take a 5-10 minute break. The key is to get out of your study environment every now and then just to shake yourself up a bit. Be sure to go back to the books though.

DO look after yourself
Make sure you get plenty of sleep, decent food and exercise. This will make a big difference to how effectively you study. Exercise is particularly important during study time. Curiously, it gives you more energy to study. (Don't ask me to explain the science behind this - I was always a failure in biology. Ho ho.)

DO make tapes to memorise information
Some information just has to be rote learned, such as quotes for English exams, vocabulary for language exams and formulae for Maths and Science exams. I find it really helpful to record the information onto a cassette tape a couple of weeks before the exam. I play the tape each night when I'm in bed and also in the car.

If you decide to give this particularly nerdy study tip a shot, make sure you destroy the tape after the exam. It is a special kind of embarrassment when you are in the car with a whole group of people and someone accidentally puts your study tape in the cassette player. Oh how they will laugh as you solemnly drone through line upon line of Tennessee Williams!

DO take practice tests
It is really important to practice working under exam conditions and practice tests are the best way of doing this. Try to get as many past exam papers as you can possibly get your hands on. Don't ruin it for yourself by cheating.

DON'T study in groups or with a friend
In my experience group study is good in theory, bad in practice. Short study meetings can be worthwhile but extended study sessions are not advisable because you and your friends will distract each other. Only study with a friend if you are the less focused and conscientious one!

DON'T study in your pyjamas
Rolling back into bed will never be far from your mind if you wear your pyjamas. Get up, have a shower and dress properly for the day. You might also consider wearing stilettos and a suit of armour. This makes it just too much effort to get up and walk away every five minutes.

DON'T give up
Don't chuck the towel in just because you cannot get your head around one topic or question. If you can feel yourself getting frustrated and irritable, make an appointment to go over the problem areas with your teacher/tutor/lecturer and move on to something else in the meantime. The trick is to stop and move on while you still have some momentum rather than when you are totally overwhelmed and banging your head against your text book.

Most importantly, DON'T stress out and lose your sense of perspective
Of course it is great to do well in your exams. However, in my experience the world does not cave in when you don't. (Well it hasn't so far, anyway.) Relax, pace yourself and don't beat yourself up. Now, go forth and study!

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New service helps patients manage vision loss

Source: Department of Human Services, Human Service News, Vol 5, No. 8, September 2006, p. 11

An initiative by Guide Dogs Victoria (GDV) in association with the Royal Victorian Eye and Ear Hospital is set to improve the quality of life for many patients with poor eyesight.

The Centre for Vision Independence is a free, independent advisory service to help vision impaired hospital patients better manage their loss of sight. Located at 100 Victoria Parade, only 50 metres from the Eye and Ear, the centre offers impartial advice on issues such as pensions and concessions, advocacy and access, community support services, counselling services, employment support and mobility aids.

The centre also has a display room containing a range of low-vision tools, including magnifiers, adaptive technology and talking books.

Eye and Ear Hospital patients are referred to the centre by hospital ophthalmologists, orthoptists and nurses.

Chief Executive Officer Graeme Houghton said the hospital was delighted to be working with its partner organisation, Guide Dogs Victoria, on this project.

'Research conducted at the Eye and Ear showed many hospital patients with low vision were not aware of the services available to them in the community.

'That can negatively impact on their emotional wellbeing,' Mr Houghton said.

'The same research indicated that people who did access low vision services had significantly improved quality of life.'

Guide Dogs Victoria Chief Executive Officer Dr Graeme White said the centre's experienced professionals would refer patients to all appropriate Victorian providers of low-vision services and follow up to ensure patients received the assistance they required.

The Centre for Vision Independence is open from 11 a.m. to 5p.m., Monday to Friday.

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Editor's Note: The following two articles examine developments within local and international research in the treatment of common eye conditions.

Scientists seek to restore sight

Source:Adapted from BBC News, July 11, 2006.

URL:http://news.bbc.co.uk/2/hi/uk_news/scotland/glasgow_and_west/5168862.stm

Pioneering work to tackle two common forms of blindness is being undertaken by University of Glasgow scientists.

Dr Keith Mathieson hopes an electronic optical implant will help blind people to regain their vision. Technology similar to that found in devices like digital cameras could be in use within a decade. Dr Mathieson said: "By implanting a device into the eye, we hope we will be able to fool the brain into believing the retina is still in working order."

The chip would assist about one million people in the UK with age-related macular degeneration or retinitis pigmentosa.

'Recognise faces'

Dr Mathieson said: "Advances in microelectronics have allowed us to develop a small device to be implanted on the retina itself. "The device would contain an imaging detector. "If light forms an image on the detector, then the result will be electrical stimulation of the retina in the shape of this image. "The stimulated cells then send the information via the optic nerve to the brain."

The implant prototype has 100 pixels but the team hope that number will increase significantly as their work progresses. Dr Mathieson, said: "Around 500 pixels would allow people to walk down the street and recognise faces. "Beyond where we are today it might be possible to make smart chips which have memory in them which would allow action replay and slow motion."

Research leads to eye disease treatment

Groundbreaking new Melbourne research could save the eyesight of the thousands of Australians needing a corneal transplant.

Health Minister Bronwyn Pike said the Royal Victorian Eye and Ear Hospital had attracted German doctor Christine Wittig to Melbourne to test and trial a revolutionary treatment for the degenerative eye disease kerataconus.

'Kerataconus is a debilitating eye condition affecting about 10,000 Australians every year, eventually leading to blindness. Until now, the only way to overcome it was through a corneal transplant.

'This new research trial involves applying riboflavin (B2) into the eye and photo-sensitising it with UVA light to strengthen the cornea and stop it from bulging out of shape.

'Doctor Wittig and her team are confident that this technique could be performed in a clinical setting as early as Easter next year, giving patients a quicker, less-costly treatment for their eyesight with fewer side effects.'

Ms Pike said that while transplants were highly successful, they might be rejected by the body, need constant eye-care and face possible wear-out, meaning another transplant.

'Dr Wittig's revolutionary treatment could save patients significant time, money and further eyesight problems.

'This new technique will also take pressure off the RVEEH corneal bank and allow donated corneas to be used for treating other conditions or eye injuries.'

Ms Pike said across Australia only kidney transplants were in more demand than corneal transplants with the RVEEH performing around 150 per year, making it the busiest transplant hospital in Australasia.

Dr Wittig is conducting the trial at RVEEH over the next year, in part thanks to a $15,000 sponsorship from the hospital.

'I am confident this trial will see a new, fast and inexpensive option that will be a long-term alternative for saving the eyesight of kerataconus sufferers.

'By strengthening the eye using riboflavin, we will be fixing the core problem, rather than just replacing what doesn't work.'

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Your Choices

Gas and Electricity Choice

The Essential Services Commission has launched a campaign to educate Victorians about gas and electricity choice.

Many people are confused about their energy retailer options and may be unaware of the alternatives. As part of its campaign the ESC has developed an easy-to-understand "Choice" brochure, detailing tips on how to compare costs and services.

This brochure is available as a large print file or mp3 file and is available to download from the ESC website http://www.esc.vic.gov.au/public/For+Consumers/Energy/Choosing+a+retailer/

An audio copy, as well the large print or mp3 file are available by calling the ESC on 1300 134 575, who are also able to answer any other questions you may have.

Information on the Telstra Prospectus

Editor's note: Thanks to Vision Australia for this information.

The Prospectus for the Telstra T3 offer is now available in accessible formats, including Braille, large print and on audio CDs. If you wish to obtain a copy of the Prospectus in any of these formats, please call the T3 Telephone Information Centre on 1800 18 18 18.

The Prospectus can also be viewed via the website, in HTML, large print or Rich Text File, visit www.t3shareoffer.com.au. You will need to enter your country of residence, and then your state and postcode and agree to terms and conditions of accessing the site. The link to accessible information is third from the bottom on the menu at the left of the page. The website is accessible to people using adaptive technologies.

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Sport Mad

Paralympic Talent Search

The Talent Search Program is a new initiative of the Australian Paralympic Committee (APC) (http://www.paralympic.org.au). Its main aim is to identify people with physical disabilities, vision impairments or intellectual disability who display the athletic potential to one day, make it to Paralympic level competition.

The Talent Identification Day is open to people with cerebral palsy, limb deficiencies, people in wheelchairs, people with a vision impairment to name a few. The age group that is being targeted is 12 years and above.

A 2005/06 calendar incorporating 37 Talent Search Days across all states and territories of Australia has been developed.

Each Talent Search Day involves a series of testing including general measurements as well as sport specific tests. Head coaches from the targeted sports are involved in the testing process and are ultimately the "talent spotters".

Identified participants are grouped in two tiers - Tier 1 include those targeted for 2008, and Tier - 2 for the 2012. The program aims to identify 150 potential Paralympians by the end of 2006. This is the first step in the process of identifying people with disabilities who can display the potential to make a future Australian Paralympic team. In most cases it will take years of training and preparation to reach the standards required to compete at a Paralympic level.

People who are identified as showing potential will be encouraged to take the next step in their sporting endeavours, which will vary from sport to sport and person to person.

Victoria's Talent Search Days are as follows:
11 November 2006 - Warrnambool (Western)
9 December 2006 - Moe/Morwell (Latrobe Valley)

For more details contact Tim Matthews on (03) 9614 6800 or email tim.matthews@paralympic.org.au

A look behind blind cricket

Written by Nick Pepper, Secretary, Victoria Blind Cricket Association

Editor's Note: Blind cricket is finally receiving the recognition it deserves with a chapter included in Max Walker's new book titled "Caps, Hats and Helmets: Cricket's a Funny Game", published by Tangle Press. Also, best wishes are extended to the 16 Aussies (seven Victorians) who will be representing Australia in Blind Cricket World Cup in Islamabad, Pakistan from the 1st - 17th December 2006. If you are interested in assisting the team, please contact Lindsay Heaven on 98570152.

The Victorian Blind Cricket Association (VBCA) is the home of blind cricket in Victoria, which was invented in Melbourne in 1922. The world's first sports ground and clubhouse for blind people was developed at Kooyong, Melbourne in 1928 and is still used today as the home of the VBCA.

Victoria has always provided one of the strongest domestic blind cricket competitions in Australia. The game of blind cricket is a version of the game which has been adapted so that it can be played by blind and partially blind players. A noticeable difference from traditional cricket is the ball which is made of plastic and contains bottle tops and lead weight to give the ball an audible sound when bowled or thrown.

There are varying categories of eyesight in each team, with some players being totally blind and others with varying levels of sight.

Blind cricket is played in several countries and there is the opportunity to participate in national and international tournaments if players aspire to pursue this level of the game. However, our primary focus is at a domestic level and for the enjoyment of all.

Matches are played from the first weekend in October until the Labour Day weekend in March and all matches are played at our venue at Kooyong behind the Vision Australia building on Saturday afternoons.

We currently have five teams who compete in a 10 round competition and we hope to bolster our playing membership to a point where a sixth team can be formed. Training clinics are held for all new players, with a junior development program run on Saturday mornings throughout summer.

Anybody interested in giving blind cricket a try should contact the Victorian Blind Cricket Association Secretary at secretary@vbca.org.au. More information, including a summary of rules, can be obtained by visiting www.vbca.org.au

Make a Splash

Would you like to learn how to swim, swim for fitness, become involved with your local swimming club or swim competitively?

Swimming Victoria Inc. (SVI) is the peak body for competitive swimming in Victoria, offering assistance to Victorian clubs and coaches and for enthusiastic swimmers looking for a suitable program to make a splash!

SVI can provide information on how and where you can learn to swim, details of clubs and coaches where you can start your training, how you can be classified for participation in competitive swimming in Swimmers with a Disability (SWD) specific events, as well as advice and information for coaches in teaching swimming to people with disabilities.

For further information on how to make a splash at your local swimming club, contact Swimming Victoria on (03) 9686 5222 or email sv.admin@vic.swimming.org.au

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Tech Savvy

Google Accessible Search

Google Labs have introduced for test "Accessible Search" (http://labs.google.com/accessible/). This site has been designed to "identify and prioritize search results that are more easily usable by blind and visually impaired users. Whilst the regular Google search assists in finding documents that are most relevant, Accessible Search takes this further by locating the most accessible pages in the results displayed. This is done by looking at the HTML markup found on a webpage. For more information visit the FAQs at http://labs.google.com/accessible/faq.html

Updates from Quantum

Source: Adapted from Quantum Technology media release, "A New Way of Reading with Dots", Oct 2006, written by Bronwyn Davies.

Jot-a-Dot is an exciting new concept in braille writing that uses modern design principles and fabrication methods to achieve a robust, small braille writing tool suitable for all blind people. Developed in Australia by specialist manufacturer Quantum Technology, it represents an investment in the future and importance of braille.

Jot a Dot is a truly portable device weighing in at just 350g (12 oz). It has a regular braille keyboard that has been designed to fit a wide variety of hand sizes, and incorporates excellent ergonomics.

Very young children can use it for scribbling before they begin formal education, as well as using it to jot down quick notes right through their school years. Many adults use Jot a Dot for the myriad of small notes that sighted people will jot down on a piece of paper, such as a phone number, reminder, or receipt number when paying bills over the phone.

Jot a Dot has been designed to withstand many different environments and it is hoped that it will also be useful in developing countries where braille writing options are often non-existent. For further information visit www.jotadot.com.

JAWS Scholarship Date Extended

Quantum Technology have extended the deadline for applications for this year's JAWS scholarship, which is open to students who plan to undertake full-time university, TAFE or college studies in 2007 (2007 must be your first year at a tertiary institution). Open to Australian or New Zealand residents who are blind or vision impaired, Quantum would like to know (in 500 words or less) why you need a Freedom Scholarship and how it will assist you in your tertiary studies. There are 8 copies of JAWS Professional available to win, with once copy to be awarded per successful application.

Send your applications and enquiries by email to info@quantumtechnology.com.au or via mail to

Quantum Technology PO Box 390, Rydalmere NSW 2116 Australia.

Applications must be received by Friday 1 December 2006, and winners will be notified by e-mail and announced in the next edition of LiveWire.

Nintendo Develops Games For The Blind

Source: Adapted from AudioGames.net, August 05, 2006

Nintendo has developed 7 mini audio games that can be played on every GBA compatible platform, including the GameBoy Advanced, Gameboy Micro and Nintendo DS.

The games are to be sold under the name of Sound Voyager, which in turn is part of the Nintendo Bit Generations line of alternative games. Click the following link to read everything about Sound Voyager:

www.audiogames.net/db.php?action=view&id=SoundVoyager

And for those who would like to make their own...

Audio Game Maker: Game Building Environment for the Blind

Source: http://audiogames.net/ Last accessed 15.09.06

The Bartiméus Accessibility Foundation has announced the development of Audio Game Maker, an application which enables visually impaired people to make their own computer games. A first prototype of the application is scheduled to be released in February of 2007.

Audio Game Maker aims to increase the number of computer games for the visually impaired, since very few accessible computer games exist. Many visually impaired players want to create their own games but give up when confronted with programming difficulties and other technical issues. Creative players manage to modify existing games with their own recorded sounds in order to make 'new' games. Despite these efforts, there is a huge demand for an accessible tool that enables visually impaired people to make computer games.

Audio Game Maker aims to be a solution for this problem by offering a simple and accessible game building environment. Audio Game Maker is part of project Game Accessibility, a series of activities conducted by the Bartiméus Accessibility foundation in order to improve the accessibility of computer games for players with impairments. Accessibility has been researching the accessibility of computer games over the past few years, and participated in the development of two games for the blind: Drive, an audio racing game, and Demor, a location-based audio-augmented reality game.

Please submit your suggestions, wishes and recommendations at the Audio Game Maker forum (Game-Accessibility website).

Internet support for young people

Source: Adapted from Department of Human Services, Human Service News, Vol 5, No. 6, July 2006, p. 11

A new website provides information and links to all Victorian Government services for young people aged between 10 and 18.

Developed by the Office for Children, the Youth Services website (www.dhs.vic.gov.au/youthservices) also provides a section for Department of Human Services-specific youth services. Site features include:

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Entertainment

Accessible Podcasts

If Australiana is your thing, you can't go past the website www.australianpodcasts.com.au, which provides an interesting and accessible range of podcasts such as IHistory which combines mp3 players, podcasts and a local history trail to engage students in Australian History, The Vinyl Lounge which involve crazy Australian comedy and "Seeking Illuminations" which focuses on politics and social justice as well as many more. Worth a look...and hear!

And audiobooks?

Librivox (http://librivox.org/) is a rare thing in the public domain - an experiment that was started for the benefit of a 10 year old boy and despite its massive growth and appeal remains accessible and most importantly, free! The site includes downloads of books, short works and collections and poetry that no are no longer subject to copyright law. Chapters of books are read by dedicated volunteers from all over the world, with volunteers always welcomed. If you are interested in giving a hand or would like to browse their selection, visit http://librivox.org/

More radio stations than you can handle...

With over 3000 radio stations available for your listening pleasure, Mike's Radio World may well be for you. The site provides links to stations that cater for the tastes of die-hard 80's music fans, adult contemporary, nostalgia and even Christmas music! For more information visit: http://www.mikesradioworld.com/

Audio Description: The Scoop

Source: Media Access Australia, Audio Description Online, September 2006 www.mediaaccess.org.au/audiodescription/c.aspx?id=63

Audio Description (AD) on DVD

You may have heard that audio description is available on various DVD movie titles. The audio description option can be found in the language specifications on the back of the DVD and can be listed as "English for the vision impaired", "Audio Described for the Vision impaired", "Descriptive Video", "Audio Description" or "English descriptive audio". The audio description can be switched on from a sub-menu, usually Language, Sound or Setup.

Some work is being done in the UK to develop self-voicing menus for DVDs, which should have a flow-on effect in Australia.

There is currently a very low percentage of audio described DVDs released in Australia. Media Access Australia has been in contact with the Australian Visual Software Distributors Association, to recommend that where AD files exist for a movie, that the track is incorporated on the Australian release.

You can help by writing to the distributors of your favourite movies and urging them to incorporate AD tracks. Once a DVD is released it's usually too late to incorporate the track, but the distributor may decide to release future products with AD.

There is a list of audio described movies available on DVD in Australia on our website at www.audiodescription.com.au. Narrative Television Network's website also has 50 classic movies with AD downloadable for free (www.narrativetv.com/). If you know of any other titles which are audio described we would love to hear about them. Email us at info@mediaaccess.org.au or call 02 9212 6242.

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Perspective

Nigeria: People Who are Blind are Not Blind People

(Adapted from ThisDay Online, Nigeria, Tuesday, September 12, 2006, written by Wiliams Afolabi Ojo. Source: Blind World Magazine http://www.home.earthlink.net/~blindworld/)

One of the ethnic groups in West Africa, the Wolof, say that when you see a turtle on top of a fence post, you know he had some help. Dr. Bitrus Bani-Ikilama, is one proverbial turtle, who having been helped to the top of a fence post, has worked hard all his life to ensure that other turtles are helped in a similar fashion. He was not born blind, but was blinded by measles at childhood. He could have lost all hope of becoming a useful vessel in society.

But, a man, Dawuda who he still talks about fondly and whose black and white photograph adorns his sitting room in Zaria, restored hope in his life. He helped in financing his schooling. That helped change the life of the young Bitrus and gave him a vision. After graduating abroad in 1967, he became the first Nigerian physiotherapist who is blind. He went on to actualise his vision six years after graduating and returning to Nigeria. That actualisation is now 30 years old; it is called Hope for the Blind Foundation, based in Wusasa, Zaria. The Foundation, which was started with N20 now provides a massive and amazing support for people who are blind across Nigeria.

The Foundation has built a reputation for delivering crucial support and services to persons who have gone blind and their families. These services include Braille transcription and library, counselling, books on cassette, orientation and mobility training, craft skills training, scholarships, training and research through Hope Institute of Development and Research, and provision of medical and social care. The mission statement of the Foundation is: 'To be a circle of support around blind people, assisting them through service provision and training that will help them to be dignified, independent contributors to society.'

"I am a big dreamer," says Gani-Ikilama, the chairman of the foundation. When asked what motivated him to start the foundation, the genial man replied that that is self-evident. "I was motivated by blindness. When I returned from Lagos to Zaria in the 1970s, my friends who were blind who grew up together with me asked me what I could do for them, because given my own education and exposure government would listen to me. Even though I knew that government did not listen to anyone, I wrote to the government on what could be done. They never replied. I thought hard and then arrived at this: We Can Give Hope. That is how we started by giving hope to people who are blind. I was hoping, however, that government will wake up. But, in 30 years, government has not even taken notice of us. President Obasanjo is my friend. He has invited me and we have chatted, but I don't think he too has taken notice."

But, while government may not have "taken notice" in the sense of assisting in this awesome task of helping the visually-impaired, it has taken notice of Bitrus Gani-Ikilama's service to humanity. Obasanjo recognised him in 2002 as an Icon of Hope and later honoured him with the award of Officer of the Order of the Niger (OON).

"People who are blind are not blind people", says his son, Andrew Gani-Ikilama, who is now taking charge of the foundation. Andrew, who not visually impaired, took over from his father as the executive director of the foundation in 2001. Already his youthful dynamism has led to the creation of Hope Institute of Development and Research, which is a training, consulting and research arm of Hope for the Blind Foundation. The Institute has a partnership with Kansas Wesleyan University, Kansa, USA.

For the laudable activities and immense contributions of the father and son to humanity, through their care for those who are blind, the Gani-Ikilamas were nominated by people as positive leaders in the Alternative Who is Who that will be released soon by the Centre for Social Science Research and Development (CSSRD) headed by Professor Bayo Olukoshi.

The story of Hauwa Ishaya is a key index of the wonderful work that the foundation is rendering. Hauwa was born blind and never went to school. Her father threw her mother out of their home with Hauwa and her brother, who were both born blind. At 11 in 2005, she was introduced to Dr. Gani-Ikilama. Within a few weeks the foundation found a place for her in a school for children who are blind. Hauwa's performance in school shows what a terrible waste it would have been if she was not helped by the foundation. In her last exam, she led her class. The foundation spends an average of N50, 000 per year on each pupil/student under it's care, with 35 such pupils currently all over the country. The foundation therefore calls on charitable Nigerians to adopt a pupil and pay the annual expenses. For such charity, the adoptee receives the academic report of the student and other news on the 'star child'.

"We don't have charity in this country", laments Dr. Andrew Gani-Ikilama. "What we have in terms of charity is so small, and we don't even promote that. We don't encourage it. I hope others will wake up like we did and do something for the communities. Government will not do it."

An ophthalmologist from the US who is a friend of the Hope for Blind Foundation regularly comes to Nigeria to perform free eye tests and treatments, including surgery, with approximately 370 people have been treated this year. Apart from this form of volunteering, the foundation gets funding from churches in Nigeria and Torch Trust in the UK. But, such assistance is usually too small for the task of the foundation.

"What I have done speaks for itself", says the energetic former ABU don. "We have helped people who are blind to go to school, get employment and get into society. But the government is not even willing to duplicate what I have done. The governments of Rivers, Benue and Gongola States invited me in the past to talk to them on what needed to be done, but nothing came out of all that. I have lost faith in government."

CSSRD, the organisation that organised such positive leaders as the Gani-Ikilamas, is an independent social science research organisation based in Ikorodu, Lagos. It is involved in a project funded by the Ford Foundation as part of a worldwide initiative that seeks to build knowledge on, promote and recognize new leaders in various communities whose work and personal example have contributed to positive social change but do not yet command national attention.

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Signing off

Well we have come to the end of another edition of Parent news - I hope you enjoyed reading this publication. As always, contributions and feedback are welcomed. If you have an article, information piece, poem or story that you would like to share with other parents, please forward this no later than 19th January, 2007 to Jessica Zammit by mail (PO Box 24, Sunshine, VIC 3020), email (jessica.zammit@bca.org.au) or call (03) 9372 6400.

Also just a reminder that if you have changed your address or are interested in received Parent News via email please contact the BCA National Office.

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